Wednesday, April 21, 2010

Update - Weekend through Tuesday

Saturday started with me leaving around 7:35am and joining fellow LCCC members at Lyndon Diner for breakfast before we cleaned up Route 283 of all trash for a 2 mile section. Went well until I fell and twisted my ankle, but I continued and felt better as I walked.

Got home and found Adele up and busy, and discussed Clonazepam again with her. She feels it helps, so she is back on 1/2 pill a day again. It does work wonders now, but if we can get off Welbutrin (that makes her anxious and nervous while getting her doing things a a rapid pace), I think the clonazepam can be dropped again. It did make a much better Saturday.

Sunday, we woke by 6:30 and left for our road trip with LCCC to Harper's Ferry in West Virgina. Nine Corvettes, 18 people, were part of this trip, and everyone was having a great time. Adele felt the love from everyone, and really enjoyed the time away. She is ready for more of these trips, now to work them into our schedule with the GA trips we will have. I even had her agreeing that a Corvette Museum trip would be a fun time!

Monday and Tuesday were work work work for me, while Adele was home working in the house. She really enjoys her new found freedom and has been taking advantage of it, with outings to friends houses, prayer groups and other ways of getting busy while being retired.

Adele has been doing well since Dr Camerino's appt way back on April 8th. The med changes and our inclusion of Clonazepam have done the job. Next appt is early May and possibly more meds can disappear, or be reduced. Until then, I am so happy she is feeling this good for an extended period of time. She actually has a day or two that she does not think of cancer at all! Wonderful!!!

Thank You Lord for everything that You have done for us, and all the You will do for us today!

Friday, April 16, 2010

What a week we had

Last Thursday after the doctors appointment we went to Yoder's for a late lunch, enjoying their lunch buffet using a gift card she had received from one of the teachers at Blue Ball.

The teachers had given her a ?Sunshine Basket? - I am not sure of the actual words they use, but all the gifts brought tons of sunshine into her day. We have been eating out at various locations for a while with gift cards they sent and enjoying all the DVDs and other items that were included.

Anyway, back to the last week. The change in meds has been positive, Adele has been her her old self (with some minor differences) for the past week! She has been a bit anxious, but we both feel one of her meds makes her feel that way, and hope to drop it also.

Thursday was lunch out, did not need dinner. Then Mom & Dad had a car problem - yes, Toyota problems - and called us while we were finishing lunch. Ended up with no problem actually, just a misunderstanding and age? Friday we met an old friend at Ten Thousand Villages Tea Shop and enjoyed live music and a light supper. Haven't seen Lowell for quite awhile and it was great catching up with him. Thanks Facebook for reconnecting us again. Saturday and Sunday quickly passed and back into my work week.

Adele has been having one good day after another, and it is showing. She went shopping with Bobbie, Blue Ball and Lancaster, she also went to lunch with her Prayer Group friends another day. This Thursday, she came up with a great idea. Off we went, in the Corvette (top up as it was a bit chilly), to North East, MD for a crab cake sandwich at Woody's Crab House and then a stop at Eldreth Pottery's factory and a new piece of their pottery.

One good day after another, now this is what life used to be like, last time we were doing so well was during last summertime. From September on - it has been life on edge here in our household. Finally we are seeing the light at the end of the tunnel. God is good and with us all the way, and is supporting both of us in all of this journey. I am posting less and less as things get back to the 'new normal' in our house. Maybe an end to this dialogue is coming? Thanks be to God for His help in everything we have been through for the past 2 1/2 years.

Adele's retirement starts on May 17th, as does her Social Security. She turns 62 on the 15th of May, so everything is hinging on that date. Checks should start arriving by June or July and we figure they will be close to what she had been receiving as disability pay form the school district - what a wonder that God has everything planned so well for us! Thanks to everyone who has been following this and giving us so much support. It has made it much easier to let everyone know what is going on, without the ?pain? of repeating it continuously.

Thursday, April 8, 2010

Thursday

Today has been wonderful. After a bad day yesterday, Adele was finally able to sleep all night (11 hours) and that helped her greatly.

We had a doctor's appt this morning and he is helping in getting her down off so many drugs, it is a slow process, measured in months, not weeks. He gave her a month of Seroquel XR 50mg and will see her in one month. Then he will decide on the next step.

She has agreed that she needs support groups dealing with cancer. She needs to communicate with others that have gone through what she has, and not just people who cannot imagine what she has been through. The "Laughter Club" in Lancaster is our first attempt at that type of interaction. Healing and good feelings through laughter, at the Lancaster Cancer Center, looks like a group she would like to be involved with.

One other goal we are looking forward to are interaction with the Corvette Club this summer. First trip is to Harpers Ferry in West VA. Sounds like a great way to have fun with a good group of friends.

Pray for more good days like today! Thanks - Rick

Wednesday, April 7, 2010

Last week

There still are many ups and downs that Adele goes through daily. I never know who I am waking up next to, so most mornings, I get up early and out of bed to distance myself from her moods. She goes from enjoying a day out with family and great dinners (OK, some dinners were not so great) and then sleeping until 4pm other days. We are trying to get away from so many pills, and I keep believing that is happening. Then later I find she has taken too many again. Once we get to a steady use of pills, and not changing what she uses every day, we should see some sign of if this is the right thing to do. We did drop 1 mood stabilizing drug that basically makes her a zombie after she takes it - within 3 hours from taking it she MUST go to bed and sleep. The doctor wanted her to take it in the am also, and I rebelled - calling him way to many bad names. I do not want a zombie wife who sleeps all night and day - just ignoring all her wonderful news.

She seems better - we started the new regimen on Thursday last week, and she slipped only once. I now have those pills, and she seems better. Bad night of sleep Sunday so Monday was mostly stay in bed for her. Tuesday was up and out by 8am and today she is up and getting ready by 7:30 am (our target time for her to wake) - I am usually up at 5:30 - 6 am.

Pray for good days to turn into wonderful days! With retirement now in sight, she has plenty of time on her hands, and then with all the good doctor reports - WOW - she should really being enjoying them. With my job, we can leave at a moment's notice for lunch at Northeast, Md and a crab sandwich, with a stop at the pottery place on the way back, almost any day. Or a trip to GA to see Ruby (and Eric & Julie) almost anytime. Pray for her to enjoy her life and live it to the fullest!