Tuesday, December 16, 2008

Day 1 @ John Hopkins this week

Today we registered downstairs and met with Laura. Went upstairs to IPOP (our home when an out-patient in JH). Diagnostics done, much blood drawn. Then it was my turn. Learn how to change the dressing on the peresis catheter, learn how to flush the catheter and learn how to give the GCSP shots to her. Shots start 12/22 until peresis (when they take out the stem cells) is done around the 31st?

I was a mess by the time we finished, how does she feel? We learned that she will NOT be able to hold or cuddle Ruby when they are here for Christmas. The doctor stopped short of saying she should not be in the house. He said all kids are germ buckets, and a danger to the success of the BMT. But Adele will be lowest around the 26th, so we are going ahead with everything. Just not allowing her outside or in crowds.

Crying and feeling bad for the evening, just such a dissapointment for her. Debbie the workaholic was not home til around 10. Love her for the help she is providing. Like the Sweet n Sour Pork and rice she had prepared for our supper.

Rick

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