Day 90 after transplant

Only 10 days from Day 100 and the first milestone.

Adele is still suffering from a sinus condition, which blocks fluids from draining and puffs up her nose and cheeks. She is trying to sleep on 2 pillows, but is uncomfortable and fitful all night. Can't even cuddle properly, but that's not so new as it was worse when she had 2 catheters in at one time. She is still taking antibiotics, using a saline low pressure nasal wash and other measures every day. It seems to take forever to get better. She did make another doctors appointment for this week, just to make sure everything is OK.

I have a major problem with wondering every day what mood will Adele be in? Is she going to be positive? Is she going to be down about her slowness to recover, if it really is slow, we don't do BMTs every day. Will she want to go somewhere or sleep in and stay in PJs all day? Ha, that has not happened for awhile - Thanks God. Anyway, I am trying to get things done and get out of the house as many times as I can, without running away all the time. Have to balance the running away with sitting, hugging and soothing.

Mornings are the worst, and by later afternoon Adele seems to be much better. I have started saying when asked how she is "She is doing well right now, not sure about tomorrow yet." That is our life for the past 18 months since this NHL was found. We have gone from quick highs to lasting lows BUT we have had much more help than I ever thought we would see from everyone around us. Hopefully by the end of this summer she will be strengthened and not suffering from any more problems.

We are looking at the possibility of her teaching starting back next year (2010) after her immunizations are done and she is immune from all the childhood problems again. Thats another 9 or 10 months - wow what a thought, alone with her for another 10 months. Free to travel anywhere we want for 7 - 10 days (as long as by car, and free lodging). Maybe Georgia will see us 2 times this summer and fall?

Thanks to all - Rick