Wow! This day went from one end of emotion to the other. This morning we woke and were again confronted with our indecision about what to do next. Fear of the unknown, and worry about whether Adele will get the treatment she needs, started off our day poorly.
We go to LGH and had her muga scan that she needs before chemo starts. My son Tom had decided to take off work, and was at our house, while we were in the hospital. He text messaged us and asked "Where are you right now". Ha, we were 1/2 hour from finishing the scan and I let him know, then found out he was in our garage at home. We met at Isaac's in Lancaster and had a late lunch with him. It was really good to get another opinion, and just talk about everything with him. He came home with us, and left after 5 or so.
Then at 6:30, Martha arrived bearing many happiness gifts from the teachers at Elanco. Perfect time for them all, and so nice of them to do this for her. W@hile talking and learning about our trials in the past week, she helped quite a bit. She was the one that saw the original research that JH wanted to do, was sponsored by the NCI, which is where our JH doctor asked us to call and get an appointment.
I think we will call NCI and get that appointment and see what happens. Like he said, it is always good to have a plan B ready.
Friends, family, just the ticket for a down day, and get us up again. Tomorrow is Adele's haircut day, that is everything she has to do, nothing else. She will enjoy opening gifts for a few days also.
Thanks to all who responded to my last posts, we are thinking more clearly and hope to get started on treatment soon.
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Hi..." Oh No, YOU'll NEVER let go, through the calm & through the storm. Oh No, YOU'll NEVER let go,through the highs and through the lows..Oh No, YOU'll NEVER let go..LORD, YOU"ll NEVER LET GO OF ME!!!!"
ReplyDeletePraying and hurting for you both.
Love,
Yvonne
Sounds like a day full of God sightings and the abundance of His wonderful provision - what a blessing. I'm sure you both were buoyed by all of those events- so great for both of you mentally and emotionally. I'll be out to LGH on Saturday afternoon- we're at school this morning but supposedly will get out early..who knows ? I had Steve drop me off at school- I'm WALKING home at lunch- no driving for me down that hill in this stuff! I'll call later....
ReplyDeleteHi Rick,
ReplyDeleteYou are definitely in my prayers! And I am praying too that the insurer will be led to change the decision. I have not read the whole history of your posts here ... only those over recent days. Is there anyone at the hospital helping you, like a social worker? Or are you pursuing all of this on your own?
Dolores (from the PBCC)